Top Tips
There can often be a lack of information and, often family members can feel like they have been left
to stab around in the dark post diagnosis.
By contrast, it can sometimes feel like there is an information overload and, particularly for those in distress,
it is hard to see the wood for the trees.
Below are some of our Top Tips. These are not TDE recommendations, rather they are sources of support that have been given positive feedback by our members. We hope you find some of these useful.
to stab around in the dark post diagnosis.
By contrast, it can sometimes feel like there is an information overload and, particularly for those in distress,
it is hard to see the wood for the trees.
Below are some of our Top Tips. These are not TDE recommendations, rather they are sources of support that have been given positive feedback by our members. We hope you find some of these useful.
NATIONAL
📖 Recommended Books
*Contented Dementia by Oliver James
*I Remember When They Taught Cows to Talk by John Morris
*Dawn's Dementia Field Guide by Dawn Horne
💡National Grid Priority Service
*Register yourself or your loved one on the Priority Services Register (PSR)- this provides extra help and additional support during a power cut for elderly, very ill or disabled people, or those who rely on power for medical equipment.
🏡👵👴Care Homes
*Autumna can help you draw up a short-list of care homes near you
CONTINUING HEALTHCARE FUNDING (CHC)
It could be that your loved one is eligible for their care to be paid for by the NHS.
Farley Dwek Solicitors: specialists in Continuing Healthcare Assessments.
Alzheimer's Society information & watch here the interview all about CHC with Clara & Andrew from Farley Dwek Solicitors.
We also discuss how to go about applying for CHC during our Information Sharing Sessions.
💰Finance
*Sibstar Debit Card - helps families living with dementia safely manage their everyday spending
*VAT relief on building work if you have a disability- if you are making changes to your home to support your loved one with dementia, speak to your builder/ supplier
💊Meds- must be discussed with GP/ hospital doctors
*Riperidone- can be used for the management of hallucinations
*Melatonin- can be used to help reset body clock/ help sleep at night
🛍️Dementia Friendly Products
*The Alzheimer's Society Shop has some great products- including clocks, help around the home, activities, phones and sensory- many of which you can claim VAT relief' if you have dementia or are family, friend or carer buying on behalf of someone who is eligible.
🚶♂️Fundraising Missions
*Alzheimers Trek 26 : Take on an epic 26 or 13 mile trek in one of 10 breath-taking locations across the UK.
*Set up your own event & raise funds for The Dementia Experience- it could be a Tea Party, Plant Sale or Walk- perhaps in memory of someone you love- we'd be so grateful & of course more than happy to help you get organised
LOCAL
🏡Looking for a professional carer?
*Thrive Homecare
*Contact Us - Rusko Care
*Home - Visiting Angels - South East Kent (visiting-angels.co.uk)
*Crossroads- provide free essential respite care for unpaid carers, providing them with a regular weekly break of up to 3 hours for a 6 months period with trained support workers". Download the form in order for your family or GP to refer you.
👥Do you need some support?
*DISC: a support service for the Carers & former Carers of people living with Dementia. Based in East Sussex, they run courses for carers & & offer zoom/ telephone support if you live anywhere else in the UK or abroad.
*Carers Support East Kent: A Charity that provides Carers with the information and support
*Dementia and Me Coordinator: Emma Reader (Tenterden and Rural PCN) Tel: 07521 507451
👵👴CARM
*CARM runs relaxed and friendly Meeting Points: These are social drop ins in villages and coastal communities across Romney Marsh and areas of Tenterden. Find friendships and access to a wide range of services.
*CARM also coordinates a Befriending service that provides free regular home visits. To make a referral, or enquire for yourself, please ring the Befriending team at CARM on 01233 758122
🏡 WRAP Dementia Activities Centre
*WRAP is a small, supportive & friendly group for those with dementia "to find brain stimulation and friendship"- based in the community room of Hawkhurst House care home- open Tuesdays & Thursdays: 9.30am-3.30pm- £50 per day inclusive of lunch, all refreshments & activities.
🫶Treat for you
*Reflexology: Karen 07932 035 680- an empathetic ear & experienced reflexologist- appointments can take place at her practice in Hastings, her treatment room in Peasmarsh or she can come to your house.
🎨Creative Clubs
Let us know if you'd like to find out more about 1-1 & small group creative sessions that we are running with some of our very lovely local contacts.
Many thanks to our members for sharing these Top Tips- if you'd like to find out more about any of these ideas, do get in touch and we'll do our best to signpost you to the right place.
📖 Recommended Books
*Contented Dementia by Oliver James
*I Remember When They Taught Cows to Talk by John Morris
*Dawn's Dementia Field Guide by Dawn Horne
💡National Grid Priority Service
*Register yourself or your loved one on the Priority Services Register (PSR)- this provides extra help and additional support during a power cut for elderly, very ill or disabled people, or those who rely on power for medical equipment.
🏡👵👴Care Homes
*Autumna can help you draw up a short-list of care homes near you
CONTINUING HEALTHCARE FUNDING (CHC)
It could be that your loved one is eligible for their care to be paid for by the NHS.
Farley Dwek Solicitors: specialists in Continuing Healthcare Assessments.
Alzheimer's Society information & watch here the interview all about CHC with Clara & Andrew from Farley Dwek Solicitors.
We also discuss how to go about applying for CHC during our Information Sharing Sessions.
💰Finance
*Sibstar Debit Card - helps families living with dementia safely manage their everyday spending
*VAT relief on building work if you have a disability- if you are making changes to your home to support your loved one with dementia, speak to your builder/ supplier
💊Meds- must be discussed with GP/ hospital doctors
*Riperidone- can be used for the management of hallucinations
*Melatonin- can be used to help reset body clock/ help sleep at night
🛍️Dementia Friendly Products
*The Alzheimer's Society Shop has some great products- including clocks, help around the home, activities, phones and sensory- many of which you can claim VAT relief' if you have dementia or are family, friend or carer buying on behalf of someone who is eligible.
🚶♂️Fundraising Missions
*Alzheimers Trek 26 : Take on an epic 26 or 13 mile trek in one of 10 breath-taking locations across the UK.
*Set up your own event & raise funds for The Dementia Experience- it could be a Tea Party, Plant Sale or Walk- perhaps in memory of someone you love- we'd be so grateful & of course more than happy to help you get organised
LOCAL
🏡Looking for a professional carer?
*Thrive Homecare
*Contact Us - Rusko Care
*Home - Visiting Angels - South East Kent (visiting-angels.co.uk)
*Crossroads- provide free essential respite care for unpaid carers, providing them with a regular weekly break of up to 3 hours for a 6 months period with trained support workers". Download the form in order for your family or GP to refer you.
👥Do you need some support?
*DISC: a support service for the Carers & former Carers of people living with Dementia. Based in East Sussex, they run courses for carers & & offer zoom/ telephone support if you live anywhere else in the UK or abroad.
*Carers Support East Kent: A Charity that provides Carers with the information and support
*Dementia and Me Coordinator: Emma Reader (Tenterden and Rural PCN) Tel: 07521 507451
👵👴CARM
*CARM runs relaxed and friendly Meeting Points: These are social drop ins in villages and coastal communities across Romney Marsh and areas of Tenterden. Find friendships and access to a wide range of services.
*CARM also coordinates a Befriending service that provides free regular home visits. To make a referral, or enquire for yourself, please ring the Befriending team at CARM on 01233 758122
🏡 WRAP Dementia Activities Centre
*WRAP is a small, supportive & friendly group for those with dementia "to find brain stimulation and friendship"- based in the community room of Hawkhurst House care home- open Tuesdays & Thursdays: 9.30am-3.30pm- £50 per day inclusive of lunch, all refreshments & activities.
🫶Treat for you
*Reflexology: Karen 07932 035 680- an empathetic ear & experienced reflexologist- appointments can take place at her practice in Hastings, her treatment room in Peasmarsh or she can come to your house.
🎨Creative Clubs
Let us know if you'd like to find out more about 1-1 & small group creative sessions that we are running with some of our very lovely local contacts.
Many thanks to our members for sharing these Top Tips- if you'd like to find out more about any of these ideas, do get in touch and we'll do our best to signpost you to the right place.
