I'm recognising lots of these late stage dementia changes in mum- particularly her disorientation and distress. There have been several incidents recently in her care home where she is flagged as agitated, unhappy, refusing personal care, wandering a lot and looking for a way out.
All so brutal on our hearts but we had a very happy hour together yesterday when I took her out to the village cafe. We have a ritual there whereby the very lovely and understanding staff give us lunch plus flutes of fizz-hers with elderflower/ mine the real deal! We cheers and laugh and take the mickey out of everything. These are the moments I treasure. The rest I can do very little about. I can't stop the dementia tide from dragging her down. Hold on to the good stuff.
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AuthorClara Hebblethwaite; Founder of The Dementia Experience Archives
April 2025
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